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Ethan and Stephen Williams

In memory of
Stephen Williams

Stephen Alden Williams will always be remembered as the cheery kid seen in this photograph beside his brother and best pal, Ethan, who passed away from adrenoleukodystrophy in 1978 at age 10. The two brothers were very close, and Steve was critical to Ethan’s quality of life during his final year. Steve was a wonderful friend, brother, son and caregiver. After 60 years of living with myotonia congenita, Steve passed away on May 29, 2020.

A donation to the Boston Children’s Hospital Trust will help fund research for new therapies for congenital diseases, such as those which affected these two brothers. For his family, and for Steve himself, there is no better way to honor his memory.

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