We're fundraising to help Boston Children’s continue its amazing work for kids:
Boston Children’s has a team of cardiac specialists who have been caring for children with PVS and studying the disease for decades. Their individual vessel approach to PVS allows them to choose the most appropriate interventional (surgery, catheterization) and/or medical therapy for each affected vein in every patient.
The Pulmonary Vein Stenosis Program at Boston Children’s Hospital bases treatment on the latest clinical research. Over the past 20 years, the team has been crafting an innovative strategy in its approach to pulmonary vein stenosis (PVS) based on a new way of thinking about this rare and unusual disease. The strategy involves treating the condition on several different levels.
With your help, we can work together to fund research and save countless young lives!
What is PVS?
Pulmonary vein stenosis (PVS) is a rare disease affecting veins that allow blood to return from the lungs to the heart. Many children with a diagnosis of pulmonary vein stenosis lose the battle against this progressive disease. There is still a lot to learn about PVS, and there’s an urgent need to find effective therapies to treat the disease.
Facing a new diagnosis of pulmonary vein stenosis can be overwhelming. Surgery to enlarge the narrowed veins and catheterization to balloon dilate the veins are usually short-term solutions since the blockage typically recurs within a month to six weeks. This is called recurrent PVS.
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