My name is Christian Boyles and I am 16-yeasr-old and I have epilepsy. I have been going to Boston Children's Hospital for the past six years so they can treat my epilepsy. Dr. Loddenkemper and the crew at the hosptial saved my life. A note from my parents....
In May 2010 Christian had two grand maul seizures together. After several doctor’s visits, endless tests, and no results, we flew him to Boston Children’s. During these years his had terrible side effects from medications. There were days when he would not remember where the bathroom was in our house. He was constantly dizzy all the time and battled with double vision. He missed 34 days of school in fifth grade. Christian continued to have terrible seizures until December 2012 when he was put on a new medication which controlled his seizures. On September 2013 Christian had an EEG that was clear and on December 12, 2013 we all celebrated Christian being seizure free for two years!
At this time, Christian joined the cross country team at school (his first time being part of a team) and was running four miles a day. On July 28, 2014 Christian had a horrible grand maul seizure while he was running and we were all heartbroken. He started taking the medication he was previously on and that worked for a while but his seizures became more intense and more frequent recently. He recently underwent some more testing and is on a total of three seizure medications. The fall has been pretty traumatic for him as he is now battling panic attacks. We take it day by day and any day without a seizure is a victory. He has such a strong spirit and knows that this is all part of God's plan and we just do what we have to do.
Christian has given back on so many occasions. Even in his lowest moments, he's always thinking of others. He’s headed up a food drive for his community and followed through even with his frequent trips to Boston. When Hurricane Irene destroyed much of New England in 2011, Christian set up a lemonade stand and raised $1,700 in one day for a hurricane relief fund. His currenct goal is to help get as many peope CPR certified as he can. He holds events at a reduced cost to help make this happen. And, of course, he’s a patient partner with the Miles for Miracles and Boston Children's. We are so honored to have been partnered with these amazing runners for years now.
Thank you for your support.
Christy and Stuart Boyles
And the hospital doesn't just stop there. Boston Children's really understands the importance of training the next generation of top pediatricians and nurses, so they can continue to provide the best, most innovative care possible to kids.
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