We are very excited to once again be able to partner with our 6th incredible runner through Boston Children's Hospital Miles for Miracles program. We love this partnership because long after the finish line, we have been able to stay connected to these incredible runners who have reached out to our family and become a part of it. Through text messages, emails, and spontaneous visits, she is reminded regularly that she's never alone in her fight.
If you're reading this, then you are connected with our family somehow and you may know that we have a lot to be thankful for.
Below you can read about Kayla's journey with Boston Children's Hospital. If you can, please support Kayla in her efforts to give back to the hospital fighting for her life. Her goal this year is to raise $1,000.
We know that lots of businesses contribute matching employee gifts also so if you need any additional information so that your company can also make a donation please let us know.
When our daughter was diagnosed with autism twelve years ago at a hospital in Pennsylvania, we were told to immediately start looking into long-term care options. Kayla was 3, and we were devastated. We were told about all of the things she would never be able to do. Kayla was not walking, talking, or able to communicate with us. She barely slept at night, and we felt hopeless. Then we found ourselves getting a second opinion at Boston Children's Hospital's Developmental Medicine Unit.
Our first visit with Dr. Lisa Albers Prock was the beginning of a new life for Kayla, and for our family. Within a few weeks of that first visit, we found out that Kayla did not have autism but instead has a rare chromosome disorder called 7q11.23 duplication. She provided us with additional diagnoses and treatement options that we had not tried.
Slowly but surely, Kayla began to walk.
She started to talk.
She began to thrive.
This fall Kayla started high school and was even able to join the Junior Varsity Field Hockey team. With her amazing coaches and teammates she found her place on the field for the good days, and on the bench during the more difficult ones- but with a huge smile on her face either way.
Kayla also has a passion for animals-especially for our little cavachons named Chewbacca and Solo. She wants to be a Veternarian when she grows up.
We recently found out that in addition to her genetic condition, Kayla has heart and brain conditions as well. In the past few months we have found out that there may be a potential treatment option for her, but it has not yet been tried on anyone else with her combination of issues. While we wait for further testing and try to come to terms with what that means, we know that Kayla is in good hands.
Words will never be adequate enough to express our appreciation for the doctors and staff at BCH who are working every day to save her life. We are all excited about this opportunity we have to participate in raising money for all of the brave little ones who overcome so much just to get through each and every day.
Please join us in giving back to a hospital who keeps fighting "Until Every Child is Well."