I was fortunate last year to talk with a surgeon at Boston Children’s who has saved the lives of many young people, and he spoke of how instrumental the CU Kids at Heart has been in funding research into diseases -- such as Sturge-Weber syndrome and Moyamoya -- of which the medical community is only marginally aware. The money that we raise gets that research off the ground. Once the research is initiated and shows signs of success, other funding sources such as the National Institute of Health become available, and near miracle advances in curing or correcting childhood disabilities can be, and are, developed. The work is expensive, but the results are available to all kids, regardless of ability to pay.
I have a new patient partner, John Kenney (shown here with Charlie Waffles). John has Sturge-Weber syndrome. His parents were told that he wouldn't live past the age of 2. Because of an incredible family, prayer, and the doctors at Boston Children's, he is now 12 and thriving. My partner of the last two years, Shannon Smith, who -- because of Children's -- is conquering the impacts of moyamoya disease, remains on the team. I'm quite certain that, with these two by my side, I can get down any road.
But my running doesn’t mean much without you. It is what you do -- your support, your generosity, your contributions -- that creates the magical connection between the placing of my feet one before the other and the giving of hope, and maybe life, to some very special kids. Please, if you can, donate today.