I am so honored and excited to run the Boston Marathon for Boston Children's Hospital!
It is rare that I share details of what my son, Dylan, has been through, but I consider myself running to give back to an amazing place that gave him life.
My 15-year-old son, Dylan, has Kleefstra Syndrome. He would not have the strength he has today if it weren't for the amazing care he has always received at Children's Hospital. Born under 4 pounds, Dylan began his life with complex medical issues that required multiple surgeries and specialized care. From biopsies, to heart and liver surgeries, seizures, aspiration pneumonias, blood transfusions, intubation and sedation for weeks, G-tubes, heart monitors - it seemed to never end. Children's flew in specialists from around the country to perform his surgeries, and were invested and dedicated to identifying the root cause of his issues. Nurses were caring and compassionate, and provided genuine emotional support during difficult times. Genetics testing about 7 years later revealed a deletion of chromosme 9q34.3, and there were less than 200 cases known in the world. More information about Kleefstra Syndrome can be found here: https://www.kleefstrasyndrome.org
Now Dylan is strong, healthy, and his medical conditions are manageable. Most importantly, he is happy.
Please help me to turn my miles into miracles for kids by reaching my goal of $11,000- every cent will go to Children's Hospital and will contribute by providing equipment, family support, medical treatments, therapy, research, and much more. Any contribution is appreciated.
<3 Rachel and Dylan