Hello, I am honored and excited to be a part of the 2018 Credit Union Kids at Heart Marathon team, running on behalf of a very special boy named Evan!
Meet Evan! Evan is a very caring and thoughtful seven year old boy and big brother to five year old twins, Adam & Emily. His mom and dad could not be more proud of the thoughtful, caring boy he has become.
When Evan was four years old, his pediatrician was performing an eye exam during one of his regular checkups. She asked Evan to cover one eye and tell her the pictures he saw with the other. His response was, “I don’t see with that eye.” When the doctor moved the pictures closer, Evan responded again, “I don’t see with that eye.” Evan’s mom knew something wasn’t right and his pediatrician calmly told her that she was going to send him over to Boston Children’s Hospital for a follow-up. Sure enough, the doctors at Boston Children’s Hospital confirmed that Evan did not see from that eye. However, their research showed that they may be able to get some of his vision back using various techniques.
Evan’s mom and dad began doing all that BCH recommended and some of his vision did come back. However, it was still very poor. Evan’s mom and dad were worried that he will never have decent vision in his eye, but the doctors at Boston Children’s Hospital didn’t stop there. They recommended research that they’ve been doing and explained some of the technologies that they are working on to help kids like Evan. Shortly after, Evan was recommended to participate in his first research study.
This first study had Evan wearing special glasses and watching specially made videos on an iPad. During the study, Evan went for regular eye exams and incredibly, his vision had improved! Since then, Evan’s eye has remained at that baseline, but he continues to be followed by an ophthalmologist at BCH who continues to encourage and support Evan and his family. In fact, Evan was just recommended for a second study, which he expects to begin in December. Evan and his family are incredibly grateful for the constant research performed by the hospital and the very supportive doctor that never gives up on him. Without Boston Children’s Hospital and their research, Evan may have gone his entire life being completely blind in one eye.
Many lives like Evan’s benefit from this research every day. However, research costs dollars and without donations, that research would cease. All donations are greatly appreciated, tax deductible, and 100% of the money raised goes directly toward research.
On behalf of Evan and all the kids receiving care at Boston Children’s Hospital, thank you so much!