I’ve been a patient at Children’s since before I was born (visiting while my mummy was pregnant). Less than hour after being born at a nearby hospital I was admitted to Children’s and less than a day later I was having surgery to help my heart. This surgery didn’t fix my condition (Ebstein’s Anomaly), but it did help my heart work well enough so that I could grow bigger and stronger. The doctors told my parents that I would likely need another surgery, but they didn’t know when.
When I was six, at my annual cardiologist appointment, the doctor noticed that my heart had started to get worse. So in early April I went back to Children’s for a cone procedure and a maze procedure. The surgery itself went well, but in the ICU I developed an arrhythmia. I was on an external pacemaker for a few days, but luckily the rhythm issues fixed themselves.
The cone procedure is relatively new, so it’s hard to say if my heart is all better. For now, it’s working better, and the doctors will continue to monitor me. Fingers crossed for no more heart surgeries!
I’ve also been to Children’s for some other issues including my ears. Last September I had ear surgery, but I continue to have hearing loss in my right ear. I have another surgery scheduled for mid-May, which hopefully will fix that problem.
Participating in this walk is one way that I show my thanks to Children’s for all that they have done for me as well as all of the other patients. The hospital does so much for their patients and their families- not just medically, but also by providing entertainment, toys and games, parking vouchers for low income families, hotel assistance for families traveling from other states and countries (did you know that half of the heart patients are from outside New England?), and the list goes on and on.
Thanks for your support!