They treated us with love and compassion, and eased all our fears when they arised.
We were so thankful for everything the hospital did for us and our son, and thought we were parting ways with the exceptional staff we had become close with after Cael recovered.
Little did we know they were going to be on the hardest journey of our lives with us.
Two months after Caels surgery our beautiful daughter was born at 29 weeks gestation. I cried when I found out we were having a girl. I never expected my dreams to come true, to have a little girl with the best big brother seemed like a fairy tale. Her big brother loved her already, he named her Leah.
She was born 11weeks early due to complete heart blockage and hydrops. They had prepared us for her not to survive birth.
A team of about 30 at BCH and Brigham's provided life saving measures to stabilize Leah to make the run over to the CICU, have open heart surgery and a pacemaker put in.
My husband spent hours pacing a hallway while this amazing team fought for her life just as hard as she was fighting. No Mom or Dad should ever experience even the thought of losing their baby.
But her surgeons believed in her just like we did. And we trusted them with the most fragile life we had ever known.
From sun up to sun down, her nurses and doctors provided her with so much more then tests and treatment. They gave her love and us encouragement. They explained each beep and tube and test and medication as if she was their own. They provided us with all the knowledge they had on this rare disorder that ultimately took our daughters life.
For 46 days the outstanding medical providers gave our daughter life. Ultimately her disease took over her tiny body and couldn't fight any longer.
If it wasn't for donations like yours we may never have gotten to meet Caels little sister. We may never had become a family of four.
I believe in BCH and one day, with the help of you, they will save the life of another baby just like our precious Leah.
I walk to honor Cael and Leah. All the babies in the NICU/CICU. All her best friends/nurses, doctors, surgeons, therapists, and every person fighting to save a life like Leah's.