Kisses for Kailyn
Kailyn is a 2 year old girl who receives care from over a dozen specialists at Boston Children’s Hospital. Kailyn was born with 2 rare genetic syndromes – Trichothiodystrophy and Cockayne Syndrome Type 2. Kailyn is the only person in the world with her unique presentation of symptoms including extreme UV sensitivity, immunodeficiency, legal blindness, hearing loss, and low myelin in the brain amongst many other challenges.
We know that the team at Boston Children’s Hospital works tirelessly to give Kailyn the highest quality of life possible and stands ready to help whenever a need arises. Please help us give back to a cause that means so much to Kailyn and those who love her. The exceptional care that Boston Children's Hospital provides to Kailyn is not unique to her. Every child and family that walks through the hospital's door is offered a safe zone where they are valued and cared for. We can all agree that this is something every child deserves.
Thank you for your support!