During a routine ultrasound at 20 weeks gestation, Ethan was diagnosed with a complex birth defect called Congenital Diaphragmatic Hernia which displaced his stomach and intenstines, impeding his lung development and preventing his lungs and heart from functioning properly.
Within days, Lauren and Liz were working with the Advanced Fetal Care Center at Boston Children's Hospital to prepare for Ethan's needs.
On May 23, 2016, a team from BCH was bedside for Ethan's birth at Brigham & Women's Hospital next door. Wtihin 15 minutes they had transported him to the Medical/Surgical Intensive Care Unit, one of THREE ICUs at BCH.
Ethan had round-the-clock attention from some of the best nurses, respiratory therapists, and surgeons IN THE WORLD, and at four days old, underwent laproscopic surgery to repair the hole in his diaphragm using cutting edge technology.
In the 6 weeks he lived at BCH, he began to breathe on his own and learned to eat by mouth. Over the months that followed at home, he transitioned off his pulmonary hypertension medication, slept through the night without supplemental oxygen, and met developmental milestones right on time.
Today Ethan is the picture of health; as his pediatrician has said, "if you didn't know, you wouldn't know." His prognosis is excellent, and the longitudinal multidisiplinary care team at BCH will always be there for him (and his moms!) for any questions.
We are fundraising on behalf of Boston Children's Hospital because:
WE CELEBRATE our thriving family and all the medical professionals who helped bring us to this point.
WE KNOW that someone else donated funds that helped save Ethan's life.
WE BELIEVE it is our responsibility to help pay that kindness forward, so that all families can afford and access the treatment that Ethan received.